Firstly, for anyone still interested in reading this, thank you.
I’ve written 3-4 blog posts over the last 18 months, and each time decided, after a lot of internal conflict not to post them. Ultimately, each time, I keep coming back to the idea that me sitting around pondering the ideas of healing, grief, struggle, success, and a whole lot more isn’t really the “purpose” of the blog, as it was written.
But, over the last 6 months, for reasons I’ll probably write about here in the next little bit on this super sunny, unexpected snow day, I’ve gotten several really decent nudges from life. Ignoring those nudges, or whatever you want to call them, seems just...wrong. So, here we go. As someone said to me recently, if someone doesn’t want to read this, they aren’t going to click through.
For those of you with good memories, or with properly set up calendars, you’ll notice that tomorrow is the three year anniversary of Amie’s death. I choose the word death due to a conversation I had with Shelley a while back, in regards to the use of words to decrease the power of death, and how that sometimes makes things less true, less honest. Seeking always to be honest (and kind), I will use death, because she did not pass, she did not collect $200, and did not go straight to jail. She died. So there.
Back to it, Amie died 3 years ago, and since the annual State of the State was a few weeks ago (or a few years ago in TrumpNewsCycleTime), I thought it might be appropriate to do a State of the Strzalkowski’s to start.
Anya: Anya is now in 5th grade, and still at her wonderful little school she’s been in since Kindergarten. She’s grown a TON in the last year, and is every bit the reader she’s ever been. She’s also really, really gotten into Scratch, which is a computer programming platform developed by MIT (yes, that MIT) to help urge more kids to follow the design mindset STEM fields that we so desperately need for the next generation. She has done tons of swim lessons in the last 2 years, and is now a really confident swimmer, has taken up piano lessons, and done a few recitals. She’s doing just great.
Shelley: Shelley went back to work at the beginning of 2017, into the same agency, but a new division. She works mainly with clients who are much lower levels of need, and seems to really be enjoying her new position. She’s knitting, crafting, and creating as much as ever.
Jason: I still work for the same school district, but was hired into a new position at the beginning of this school year. I am now an Instructional Technology Coach for the district. (I teach teachers and students how to bring more technology into their practice to elevate their teaching, and increase learning) For anyone who knows me well, this is the stuff I’ve been doing for years on the side, and now I’ve gotten the opportunity to do it full time. I really miss the day-to-day with the kids, and need to work in some ways to consistently do more of that. But I really do enjoy the ability to get into classrooms (‘specially the elementary levels!) and work with teachers there.
I ran my first half-marathon in October, and then pretty much fell off the exercise bandwagon immediately. Shelley (I believe it was her…) once said that goals are really problematic when it comes to many things, because once you meet them, the brain often sees that as a thing that’s done (CHECK!), and you go back to learned behaviors. Habits, however, are learned behaviors that you follow through on because that’s what you always do. I need to do better in developing the physical fitness stuff into habits in 2018 (once the world thaws), and less on the goal side of things.
All-in-all, things are going really well for us, minus the whole “your kid died”, which is both overwhelmingly awful, and shockingly small, depending on the day (I am speaking entirely from my perspective, and the external stuff I see from Shel. I have not yet developed the ability to read people’s minds, and I’m altogether sure that I would never really want to have that ability anyway...specially working mostly in a middle school). On a day to day basis, you’d never know that we’re any different than most other families. We have this scar on our souls, and it heals a bit more each day/week/month. It’s just when something presses hard on it that you really see its effects.
One of the things that “nudged” me was a conversation that I had with someone a few weeks back. They were talking about a friend of theirs who was struggling really hard with something personal. They made the comment that they’d picked up their phone so many times to call or text them, but each time they had not done it because they really didn’t want to say the wrong thing, or interrupt them in a time of pain.
Hearing this REALLY hit a tender place, as it’s something that Shel and I have talked about many times, which is the overwhelming loneliness that accompanies the apocalypse of a diagnosis such as Amie’s. (This is not specific to cancer, but any life-changing event/diagnosis that creates an immediate before/after)
So when this person said she didn’t want to call and interrupt, I took a few beats, and then kindly and firmly said that there was no bad time, as all times were "bad", in the sense that there was never a time that they weren't living with the reality of their new lives, post apocalypse. If they wanted to connect with the person, they should always call, always connect, always reach out (assuming it was in kindness and desire to help, and not dump in). The hesitation, the lack of calling, the ghosting (to use modern internet parlance) is a wound all in itself.
I have spent a lot of time thinking about this, and here’s my “Assuming best intent” way I’ve come to terms with our social interactions with others since Amie’s diagnosis. Social relationships are like really extensive spiderwebs. We weave the strands between each other in our relationships when we do things together, almost always in person. We sit in our quiet moments and spend time with each other. Sometimes it’s watching kids play, others in doing a communal activity. We help each other move to a new house, babysit, listen to a break-up story, or go on a wild adventure. We lash ourselves to each other, knowing that we’re in motion due to life and aging, and kids aging, and it’s those lashes that stabilize us in times of need.
Once those webs are created and tied off, they don’t require a ton of reinforcement, but they do need some. A text, an email, or a call will usually suffice under normal circumstances. But when something happens that causes one person to stop motion, it sometimes tears those webs apart, because the other group moves along down life’s path, completely out of their control, while the other person has to stop and deal with their own event/tragedy. When you go through one of those situations, for some, the webs can rip away, and you’re left with the tatters of the relationships that are no longer there, in addition to the tragedy.
Adding on top of this is the normalcy of self-imposed social isolation. (Shelley shared this great article to me last week, and has me reflecting hard on it). Inside my own head, I never know how much to share, and when to share it. I’ve talked about Amie in times I thought appropriate and saw looks of abject horror on the other person’s face due to how blunt I talked about it, and how little they were prepared to have that conversation. At times I’ve even used her death as a weapon, smacking someone upside the head with it, as a means to put in context just how insignificant (to me) their problem they were railing about really was in the big picture of things.
However, there are loads more times I avoid the conversation, and just breeze past things. I choose to eat in my office, instead of with co-workers. I go do the things by myself, instead of inviting others. I put the headphones on and play my video games, instead of connecting with Shelley when she’s reaching out.
I know that this is easier, that it’s better for me to do things with others, to plan events, to act in ways like I’d like others to act...but it’s just so much easier to float down the river of the easy path, and not do the work involved in filling the bucket.
So. Make the phone call, send the text, and do the thing to connect with those people who are struggling. Conversely, if you’re the person struggling...be open to the person who reaches out, sends the text, and wants to help lift that burden a little bit.
I’m at 3 pages now, and have 5 more topics that I had noted that I wanted to write about. I think that’s a good thing, yes? So. I’m going to sign off now, and then post another blog post next week...Really.
Hope everyone is doing well, and think of Amie tomorrow (Feb. 13th).
Tell a silly joke to someone if you can, and if nothing else, draw a rainbow somewhere and smile.
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