Friday, April 26, 2013

Ne me quitte pas, mi amore (as Ms. Spektor is serenading me right now)

Captain Overscheduled here, checking in.

We had our first real checkup this week, and Shelley wanted me to do a blog post to fill people in on what they said.

Firstly, everything is totally within the boundaries of normal, and nothing to worry about.

Amie's counts, however, are lagging behind where they'd hope her to be, in a perfect world.  They're improving, but at a microscopic pace.  So they're having us keep her restricted for another 3-ish months.  That means no gatherings with lots of new people, no communal areas like pools or play centers.    Also, if she gets sick, we get hospitalized again, and that's ultra-poopy.  They're also keeping her port in at least another 3 months.

Also, that means that we're postponing our theoretical June play date at Kensington which we talked about a while ago.  We're just in hang around mode, and enjoying the heck out of each other.

Amelie's hair is totally growing out these days.  It's not easy to see, but she's got a serious layer of peach fuzz all ove her head.  It looks dirty from a distance, as if she has been rubbing soil on her head.  I don't think that's what Shelley is letting her do.

It seems to be growing in MUCH darker than it was before.  We'll see how that goes.  Shelley said that she was a blondie when she was little, and then it morphed later on.  Time will tell.

As Shelley posted on FB, the kids really love mangos.  REALLY LOVE.  I'm sure they're going to have explosive diarrhea from all the fiber, but sometimes you do have to suffer for the things you love.  Shelley surely has to suffer loving me.  :)

I was in Washington DC all week, and boy...8th graders are really exuberant. I loved it....but man I feel old.

Hope all is well with each and every one of you!

Friday, April 19, 2013

Things are growing, but in a really good way!

Greetings All!

I made the comment a few weeks back that I was going to suspend blog posting until we really had anything to report back to y'all.

That's what I've been doing, but I've also been getting a steady stream of texts/calls/emails that sound something like "Hope all is going well!", which to me means that people are checking in on us.  Fair enough, people want them some Amie.

The following are 4 videos that we took over the last 10 days:

To say that Amie is doing well would be such a massive understatement.  Since our hospitalization over Spring Break, we've only had blood draws, and big batches of happiness.

On top of that, the explosion of hair is coming. I haven't successfully gotten pictures of it yet, because of life and work and business, but she's got a fine sheen of baby hair fuzz all over her head.  On top of that, she's grown about a 1/2 inch of eyelashes ( Oh, Ms. Spepcific Shelley wants me to say that it's only 1/16th of an inch.  Oh I see how it is.  We need to be all accurate here, w e can't just celebrate this....Sheesh Ms. Perfect.  :)      ) this week as well.

As soon as you mention her hair to her, she responds "Amie put in hair clips now?", which is so damned depressing and cute at the same time.  I'll do my best tomorrow to get pics of the hair and eyelashes before I leave for DC...and post them up.  If I can't get them, I'll get it when I get back with the new and improved goodness.

Anyway...we're all good.  Hope all of you are as well.