This is the last normal weekend of the next year(ish).
We got a call from the nurse practitioner who works with Dr. Robertson tonight, and she and Shelley talked for over an hour. Here are Shelley's notes from the conversation:
A short version of the notes:
- We're most likely going to start chemotherapy on Tuesday.
- They told us to expect to be admitted for 4 days for the first round of chemo. They'll deliver the 4 drugs during the first three days, and then keep her on IV for the last day as the last drug is quite dehydrating.
- For those who are in the biz, the chemo regimen will be: Vincristine, Etoposide, Cytoxan, and Cisplatin.
- During the chemo, at least for the first few rounds, we'll be giving Amelie daily shots of GCSF, which will help her develop a healthier colony of stem cells to be harvested for the later series of chemo.
- We need to get used to being in the hospital. :)
So yeah, that's roughly what we have coming at us...and quick.
Tonight, during that phone call, I played with the girls. When I (normally) play with the girls, it's usually revolving around the basic idea that I'm an attacking monster who wants to eat some random body part....usually in the lower extremities.
We've been shepherding Amie around the house all week, and she's been getting more and more steady (as they predicted) as her brain re-wires itself. Today, she just shot away from me towards the bedroom, and it was so steady I just let her go. She ran....not walked, or sauntered, or moseyed.... She ran towards the master bedroom and stopped dead and turned around and laughed at me. No hesitance, no wobbliness. Just speed and joy and screeching happiness that her Daddy was chasing her across the room going "nom nom nom" looking to eat her toes.
We did this for the next 30 minutes, as she ran across the room over and over, and then down the hallway and into her room. We dodged around the glider, up into the crib (where they hid under blankets). They shrieked with joy as we played. There was no time spent towards worry and hesitation and fear..and that was amazing.
So this is the last weekend for that type of thing. We're going to be heading somewhere tomorrow as a family, to celebrate....nothing and everything.
So this is the last weekend for that type of thing. We're going to be heading somewhere tomorrow as a family, to celebrate....nothing and everything.
As a final picture, Shel and I sat outside tonight:
(Pardon for those young readers and overly restrictive people, but sometimes it must be done)
We sat outside, enjoyed each other, and prepared to wage war.
To be overly grandiose, I feel as though we're at the gates of Thermopylae, or maybe riding the seething waves towards a very unfriendly greeting at Omaha Beach.
In the week ahead, we're going to do our best not to soil ourselves as we head towards the gunfire.
Just know you got back up, ok? As you do the actual battle, give us all the peripheral to deal with and we can be your support team. I'm drawing a blank on actual battle lingo, but you are not alone as you storm this thing! We'll even bring you new drawers and swear to secrecy if soiling actually occurs.
ReplyDeleteBlessings! Sending you love /confidence/ and courage as you face the dragon. PS can't find the coma on kindle fire!
ReplyDeleteI laughed at your comment because I had the same issue with the comma! If you hit 'space' you should get it above the top row of letters. You can then backspace (the arroe pointing left with an X in it) & the extra row of symbols (including the comma) should still be there.
DeleteI'm not one known to sugar coat things so here it goes the next year will seem like forever thats the bad. The GOOD is it will make you stronger as a person, you and Shelley as a couple, and all of you as a family. You will love and be grateful for your kids more then you are now and yes that is possible and life will have a whole new meaning. So hold on tight cause its going to get crazy and all those freinds and family that have offered help use it.
ReplyDeleteOne thing is for sure, Amie is one tough cookie. As my Granny would say she's full of "piss and vinegar."
ReplyDeleteBTW...I had a drink with you guys last night...and I've got my armor all laid out ;-)